华人生死学
将器官捐献宣教加入我国安宁疗护服务初探
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江文诗,最高学历:牛津大学生物统计学硕士/巴塞罗那大学器官捐献和移植学硕士。现任职单位和职称:山西省人体器官获取与分配服务中心(OPO)科学委员会主任。通讯地址:山西省太原市小店区学府街128号兰亭银座。E-mail:wenshi.jiang@hotmail.com

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R48;S857.134

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Exploration of Incorporating Organ Donation Practice into Hospice Care Service in China
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    摘要:

    目前,移植器官短缺,供需差距失衡仍是全球器官捐献与移植发展面临的共同难题。 把器官捐献宣教列入安宁疗护服务内容的做法在国外已有诸多实践。器官捐献是我国《民法典》赋予公民的一项自主选择的权利,可以在一定程度上提升临终者的价值感和尊严感,为其提供更为人性化的临终关怀服务,并对其家属和社会构成一种反向关怀,也是对患者医疗自主权的尊重。同时,安宁疗护工作者具有良好的人文关怀素养,结合其工作职责和角色立场,更易在家属沟通的合适时机引入器官捐献谈话并站在患者和家属立场,不以“劝捐”为目的,而是帮助临终病人和家属获悉法律赋予的权利,在充分知情的前提下自主做出合适的选择。因此,将器官捐献宣教内容加入安宁疗护服务的做法具可行性、合理性和重要价值。 与此同时,以提升临终患者及其家属人文关怀和医疗服务质量为出发点和共同目标,逐步建立安宁疗护和器官捐献两个专业领域在学术交流,互促培训,实践协同等一系列的机制,增强两个领域的相互信任和协同能力,以实际行动为完善临终患者的服务内涵,促进两个领域的专业化和规范化协同发展开展更多的探索、研究与实践。

    Abstract:

    Currently, organ shortage and the huge gap between organ supply and demand for organ transplantation is still a common issue worldwide. Incorporating organ donation information into hospice care service has been practiced in many foreign countries. Organ donation is a right of choice granted to citizens by the Civil Code, which can, to a certain extent, enhance the sense of value and dignity of the terminally ill, provide them with humane hospice services, and constitute a kind of reverse care for their families and society, as well as respect for the patient's medical autonomy. Hospice workers have good humanistic care quality, combined with their job duties and role positions, are more likely to introduce organ donation conversations at the right time and stand in the shoes of patients and families. Not for the purpose of "persuading" them to donate, but to help patients and families learn about their rights and make a fully informed and appropriate choice. It is feasible, reasonable and valuable to incorporate organ donation information into hospice care services. At the same time, with the starting point and common goal of improving the quality of humanistic care and medical services for terminally ill patients and their families, we can gradually establish a series of mechanisms for academic exchange, mutual promotion and training, and practical synergy between the two professional fields of hospice care and organ donation to enhance mutual trust and synergy between the two fields, and take practical actions to improve the connotation of services for patients and promote the professionalization and standardization of synergy between the two fields.

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江文诗,马雅婕,何湘湘,武小桐,王云岭.将器官捐献宣教加入我国安宁疗护服务初探[J].华人生死学,2022,(1):107-125

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  • 在线发布日期: 2022-12-24
  • 出版日期: 2022-12-12
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